- Motor Neurone Disease Association
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The Motor Neurone Disease Association (MND Association) is a British charity, operating in England, Wales and Northern Ireland, established in 1979 by a group of volunteers to coordinate care, support, and research for people affected by motor neurone disease (also known as amyotrophic lateral sclerosis or Lou Gehrig's disease).
The aim of the MND Association is a world free of MND.
The Association's key activities include:
- Raising awareness of the condition
- Funding research
- Providing information to patients and carers
- Coordinating research through conferences and symposia
- Providing local care through a network of branches and regional care advisers
- Lobbying government
The MND Association organises the International Symposium on ALS/MND, a unique annual event which brings together leading international researchers and health and social care professionals to present and debate key innovations in their respective fields.
The Association's Chief Executive is Dr. Kirstine Knox. Its President is neuroscientist Colin Blakemore. The Patrons of the Association are HRH The Princess Royal, neurologist and four minute mile record breaker Roger Bannister, entrepreneur and philanthropist Joel Cadbury, palliative medicine consultant Baroness Finlay, neuroscientist, broadcaster and author Baroness Greenfield, TV personality Sir David Frost, world-renowned cosmologist Stephen Hawking (who is living with MND), Jamie Niven (Senior Vice President at Sotheby’s art dealers in New York and younger son of cinema legend David Niven who died from MND), politician Lembit Öpik MP (who lost his father to MND in 2005 and who is Chair of Patrons), and American businessman James Sherwood.[1]
External links
- Homepage for the Motor Neurone Disease Association
- Information on the International Symposium on ALS/MND
- International Alliance of ALS/MND Associations
- MND Scotland, an independent charity registered in Scotland, and the only non-research charity working in Scotland for those with MND
- The Euan MacDonald Centre at the University of Edinburgh is committed to defeating Motor Neurone Disease through innovative fundamental research
References
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