- Living With Fibromyalgia
Infobox Film
name = Living With Fibromyalgia: A Journey of Hope and Understanding
| caption =
writer = Daneen Akers,
Stephen Eyer
director = Stephen Eyer
producer = Daneen Akers,
Stephen Eyer
distributor = Trillusion Media
released =March 22 2007
runtime = 71 mins
language = English
budget = N/A"Living With Fibromyalgia: A Journey of Hope and Understanding" is a
2007 documentary film by Stephen Eyer and Daneen Akers from Trillusion Media, Inc. that explores thechronic pain condition known asfibromyalgia .The film was created as a resource for
fibromyalgia patients and their families and to help create awareness about this condition. It tells the stories of seven patients suffering fromfibromyalgia including Darlene Akers, the mother of one of the filmmakers, and Lynne Matallana, the president of the National Fibromyalgia Association and the author of The Complete Idiot’s Guide to Fibromyalgia. The documentary premiered inSan Diego onMarch 22 ,2007 at theHillcrest Landmark Theatre and has garnered wide praise within thefibromyalgia community for its empathetic approach and hopeful message.ynopsis
Living With Fibromyalgia tells the story of seven
fibromyalgia patients: Darlene Akers, the mother of one of the filmmakers; Lynne Matallana, the co-founder and president of the National Fibromyalgia Association; Randy Wold, a former mechanic anddrag racer who shares his perspective on being a man with a condition usually associated with women; Frances Jenkins, a model and actress; Lauren Armistead, a former competitive athlete, Linda Farwell, an avid bicyclist and (since the film was released) one of the faces of the2007 Pfizer Lyrica campaign; and Liana Gefter, a medical student atStanford University . The patients share how they were diagnosed, howfibromyalgia has changed their lives, how they deal withfibromyalgia , and their advice for other patients and family members of patients.Interwoven with the patient stories are experts from the Fibromyalgia Rehabilitation Program at
Cedars-Sinai Medical Center inLos Angeles ,California . The filmmakers talk to Judy Fishman, anoccupational therapist , Dr. Michael Gilewski, apsychologist , Miriam Siegal, aphysical therapist , and extensively to Dr. Stuart Silverman, arheumatologist and long-timefibromyalgia researcher.While patients do share how they personally have dealt with the
pain , fatigue, and related symptoms offibromyalgia , no specific medications are endorsed, rather a broad approach tailored for individual patients combining a mixture of traditional and alternative practices is advocated. The film’s overall message is thatfibromyalgia is a real, extremely difficult and often debilitating condition, but there is stillhope for a fulfilling and even healthy life after a diagnosis.The filmmakers have stated that Living With Fibromyalgia is the film they wished their family could have sat down to watch together when they first heard the word "
fibromyalgia ."Funding
Funding for the film was primarily provided by the filmmakers who sold their house as part of their fundraising efforts. [ [http://www.todayslocalnews.com/?sect=lifestyles&p=2275 Today’s Local News » Out of the dark ] ] The filmmakers have donated up to 10 percent of all sales of the film to the National Fibromyalgia Association to support fibromyalgia research and education.
Reception and Legacy
The documentary was the centerpiece of the National Fibromyalgia Association’s
2007 Fibromyalgia Awareness Day campaign, screening at over 125 locations nationwide over theMay 12 weekend.External links
* [http://www.LivingWithFM.com/ Film’s Website]
* [http://www.trillusionmedia.com/ Trillusion Media the Production Company]
* [http://www.fmaware.org/ National Fibromyalgia Association]
* [http://www.chronicbabe.com/articles/715/ Chronic Babe]
* [http://www.youtube.com/watch?v=QDNeh_OSqrg/ Short Interview with Producer]
* [http://livingwithfm.bravenewtheaters.com/ Brave New Theaters]References
McIntosh, Linda. [http://www.todayslocalnews.com/?sect=lifestyles&p=2275 "Out of the dark: Woman sells house to make film on chronic disorder"] , "Oceanside Times",
December 2 ,2006 .
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