- Multiple Sclerosis Trust
-
The Multiple Sclerosis Trust (MS Trust) is an independent, national UK charity that was established in 1993.
The MS Trust works to provide information for anyone affected by multiple sclerosis, education programmes for health professionals, funding for practical research and campaigns for specialist MS services.
The Trust is based in the Spirella Building in Letchworth Garden City.
Contents
Information service
The MS Trust provides an Information Service for all people affected by MS (Information Service).
It also publishes a range of books, factsheets and DVDs on aspects of the condition (Publication page).
Books include MS Explained, At work with MS, Living with Fatigue and Exercises for people With MS. The MS Trust publishes a free, quarterly newsletter called Open Door.
In 2007, The young person’s guide to MS written with Kerry Mutch, MS Specialist Nurse in Liverpool, was highly commended at the BMA Patient Information Awards.[1]
There was success in the same awards in 2008 for Move if for MS, a DVD of exercises led by Mr Motivator, and for Sexuality and MS: a guide for women.[2]
Campaigns
Campaigning is based on promoting access for people with MS to high quality specialist services
Recent campaigns have included
Increasing access to MS specialist nurses
Monitoring the implementation of the NICE clinical guidelines for MS and the National Service Framework for long-term health conditionsResearch
The MS Trust has funded practical research which will have an impact on improving services and therapies available for people with MS. Some research that the Trust funded during 2006 included:
- National Hospital for Neurology and Neurosurgery, Intravenous administration of steroids: home versus outpatient delivery[3]
- Royal College of Physicians, Audit of the implementation of NICE’s MS Clinical Guidelines[4]
- Salisbury District Hospital, Functional electrical stimulation in MS[5]
Fundraising
The Trust has several ongoing fundraising projects, including parachuting, runs, and overseas treks.
In June 2007, 79 year old grandmother Sylvia Shaw did a parachute jump for the Trust.
In 2008 the MS Trust was the Official Charity of the British 10K London Run.
Patrons
- Edith Rifkind
- Sarah Joiner
- Laurence and Jackie Llewelyn Bowen
Sir John Harvey-Jones was President of the Trust from 2001 to 2008.
References
- ^ "The Young Person's Guide To MS wins award". Open Door. November 2007. http://www.mstrust.org.uk/information/opendoor/articles/0711_16.jsp. Retrieved 15 January 2009.
- ^ "Top awards for MS Trust publications". Open Door. November 2008. http://www.mstrust.org.uk/information/opendoor/articles/0811_16.jsp#item04. Retrieved 15 January 2009.
- ^ Chataway J, et al. (2006). "Home versus outpatient administration of intravenous steroids for multiple-sclerosis relapses: a randomised controlled trial". Lancet Neurology 5 (7): 565–571. doi:10.1016/S1474-4422(06)70450-1. PMID 16781986.
- ^ "Audit of MS services". Open Door. August 2008. http://www.mstrust.org.uk/information/opendoor/articles/0808_09.jsp. Retrieved 15 January 2009.
- ^ "Functional electrical stimulation in MS". MS Trust website. http://www.mstrust.org.uk/research/mstrustprojects/projects/project372.jsp. Retrieved 15 January 2009.
External links
Video clips
Categories:- Health charities in the United Kingdom
- Multiple sclerosis organizations
- Organizations established in 1993
- Organisations based in Hertfordshire
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