- Lorenzo Odone
Infobox Person
name = Lorenzo Odone
caption =
birth_date = Birth date|1978|5|29
birth_place =
death_date = Dda|2008|5|30|1978|5|29
death_place =
other_names =
known_for =Adrenoleukodystrophy patient
occupation =
nationality = AmericanLorenzo Michael Murphy Odone (
May 29 1978 –May 30 2008 ) was an Americanadrenoleukodystrophy (ALD) patient whose parents,Augusto and Michaela Odone , sought a treatment for the disease. He was also the subject of the 1992 film "Lorenzo's Oil" which starredNick Nolte andSusan Sarandon . [cite web | title=About Lorenzo, his Parents, and Oumouri | work=The Myelin Project | url=http://www.myelin.org/aboutlorenzo.htm | accessdate=2006-06-03] Additionally,Phil Collins translated a poem written by Michaela to Lorenzo to music for the song "Lorenzo" in his 1996 album "Dance into the Light ".Quest for a treatment
With the limited research available, his father Augusto invented
Lorenzo's oil , which is the first agent to have shown therapeutic benefit in halting the destruction of the myelin sheathing of nerves caused by this disease. His parents' quest for a treatment for Lorenzo was depicted in the 1992 film "Lorenzo's Oil".Death
Lorenzo died at his home in
Fairfax, Virginia onMay 30 ,2008 , one day after his 30th birthday, with his father Augusto and his life long friend Omouri Hassane at his side. He had come down withaspiration pneumonia after getting food stuck in his lungs. He began breathing heavily (erroneously described by various media reports as "bleeding heavily"), and before an ambulance reached his home he was already dead.He had lived more than 20 years longer than doctors had predicted and was the oldest survivor of ALD. [cite web|title=Boy whose parents made Lorenzo's oil dies at 30 | work=SFGate.com | url=http://www.sfgate.com/cgi-bin/article.cgi?f=/n/a/2008/05/30/national/a165519D26.DTL&tsp=1 | accessdate=2008-05-30 ]
ee also
*
The Myelin Project Further reading
*cite web | author=Kugler, Mary | title=ALD and Lorenzo's Oil | work=About | url=http://rarediseases.about.com/cs/ald/a/041301.htm | accessdate=2006-06-03
*Vedantam, Shankar. "A Real-Life Sequel to 'Lorenzo's Oil'; After His Death, Scientist's Work May Bear Fruit." "The Washington Post".January 28 ,2007 .References
Wikimedia Foundation. 2010.
