Cystic Fibrosis Foundation Slovenia

The Cystic Fibrosis Foundation from Slovenia (Slovene: Društvo za cistično fibrozo Slovenije) is a non-profit organization in Slovenia, Europe. The foundation is a member of the European Cystic Fibrosis Society (ECFS) and Cystic Fibrosis Europe (CFE), a section of international CF organization Cystic Fibrosis Worldwide (CFW).

History

The foundation was established on 3 November 2009. Before it was a part of Association of pulmonary and allergic patients in Slovenia (Slovene: Društvo pljučnih in alergijskih bolnikov Slovenije)

Goals

The purpose of association is organized to assist all patients affected with cystic fibrosis and their families to achieve the highest possible quality of life that contribute to a better and longer life of patients affected with cystic fibrosis. The society is intended to address and alleviate social distress and difficulties of people, providing assistance to people whose health or life is threatened, and the strengthening of public health.

One of goals is also to educate / inform the Slovenian people and general public about the CF and various aspects of life of patients affected with it.

See also

• List of cystic fibrosis organizations

References

• Her fight for life, magazine Jana
• Lung transplantation is a trusted method of treatment, newspaper Dnevnik, 2009
• President of the National Assembly dr. Gantar received a delegation of the Cystic Fibrosis Foundation in Slovenia, 2009
• Next week is intended to highlight the problems of patients with cystic fibrosis, newspaper Primorski dnevnik, 2009
• The first European Week of awareness of the cystic fibrosis, which is the most common life-threatening inherited disease in Europe, newspaper Dnevnik, 2009

The foundation's publications

All publications are in pdf format and they are in Slovene language.

• Publication: Simpozium at Golnik Hospital 2009
• Compendium: CF 2009
• Poster Fighting CF in Europe
• Poster Whistle and Breathe!
• Facing CF
• First Steps in CF

External links

• Official webpage of Cystic fibrosis Foundation from Slovenia
• Društvo pljučnih in alergijskih bolnikov Slovenije
• Cystic Fibrosis Worldwide (CFW)
• European Cystic Fibrosis Society (ECFS)
• Cystic Fibrosis Foundation