List of cystic fibrosis organizations

The following organizations assist people with or do research into cystic fibrosis, a hereditary disease affecting the lungs and digestive system, causing progressive disability and sometimes early death.

Australia

*Cystic Fibrosis Australia [ [http://www.cysticfibrosis.org.au Cystic Fibrosis Australia] ] (CFA), an Australian national organization aimed at raising awareness and education of cystic fibrosis through advocacy and research

Europe

*Cystic Fibrosis Trust, a UK charity providing research, information and care for people with cystic fibrosis
*European Cystic Fibrosis Society [ [http://www.ecfsoc.org European Cystic Fibrosis Society] ] (ECFS), a Denmark-based organization of clinicians and scientists actively engaged in CF research, care and collaboration
*Association Grégory Lemarchal, a French organization dedicated to information outreach and research for cystic fibrosis, named after the French singer and Star Academy winner Grégory Lemarchal
* [http://www.ncfs.nl Nederlandse Cystic Fibrosis Stichting] , a dutch organization providing research, information and care for people and family with cystic fibrosis

North America

*Cystic-L [ [http://www.Cystic-L.org Cystic-L] ] , Cystic-L is both a Listserv and a website dedicated to the exchange of information and support specific to cystic fibrosis. Operating since 1994, Cystic-L serves people with CF and those who share their lives: medical professionals, scientists, researchers, parents, grandparents, spouses, siblings, friends and significant others.
*Canadian Cystic Fibrosis Foundation (CCFF), a Canada health organization funding cystic fibrosis research and care
*Cystic Fibrosis Foundation (CFF), a US non-profit providing the means to cure and control cystic fibrosis
*Cystic Fibrosis Lifestyle Foundation [ [http://www.cflf.org/index.php Cystic Fibrosis Lifestyle Foundation - Living Stronger! Living Longer! ] ] CFLF seeks to create therapies that engage adolescents and young adults with Cystic Fibrosis as active agents in their healthcare physically, psychologically and spiritually, thereby enabling attitudes and lifestyles that create stronger and longer lives for themselves. Founded by Brian Callanan.
*Cystic Fibrosis-Reaching Out Foundation [ [http://www.reachingoutfoundation.org Cystic Fibrosis-Reaching Out Foundation] ] , a US-based network of information and support for people with CF and their families
*Boomer Esiason Foundation, a US-based organization supporting research aimed at finding a cure for cystic fibrosis as well providing education and raising quality of life for people with cystic fibrosis, named after Boomer Esiason, a former NFL quarterback, whose son Gunnar has cystic fibrosis.
*Lungs for Life Foundation [ [http://www.lungsforlife.org Lungs for Life Foundation] ] , a US-based organization focused on improving quality of life for people with CF through assistive services, education and research
*Elizabeth Nash Foundation [ [http://www.elizabethnashfoundation.org Elizabeth Nash Foundation] ] , a US-based organization focused on research, education and patient support, named after scientist Elizabeth Nash
*National Cystic Fibrosis Awareness Committee [ [http://www.cfawareness.org National Cystic Fibrosis Awareness Committee] ] (NCFAC), a US-based group focused on increased public CF awareness through an annual national Cystic Fibrosis Awareness observance
*Rock CF Foundation [ [http://www.letsrockcf.org Rock CF Foundation] ] , a US-based non profit organization that uses the arts, entertainment, fashion and fitness to increase awareness and raise funds for cystic fibrosis. Founded by Emily Schaller.
*Liv for a Cure [ [http://www.livforacure.org Liv for a Cure] ] , a US-based foundation dedicated to raising money for fight against Cystic Fibrosis.

International

*Cystic Fibrosis Worldwide [ [http://www.cfww.org Cystic Fibrosis Worldwide] ] (CFW), an international network concentrated on increasing quality of life and life expectancy for people with cystic fibrosis
*CysticFibrosis.com [ [http://www.cysticfibrosis.com CysticFibrosis.com] ] , an internet information hub with support forums

References